Disability Representation: Epilepsy

Published on 15 November 2024 at 13:38

Happy Epilepsy Awareness Month! It can be hard to find literary representation for disabilities and chronic illnesses, especially when you're looking for something specific. Epilepsy representation is no different. The collection below organizes books according to age group. You'll find genres noted in parentheses for middle grade, young adult, and adult readers. While handbooks and seizure logs are the easiest books to find, I've done my best to balance those with works of fiction and memoirs as much as possible. I hope you'll find something in this collection worth reading.

 

Please note: I have not read all the books in this resource. I encourage you to do your own research and select the book that is right for you. If you know of a book that might be a good fit for this list, you can share it with me at contact.undergroundbookshelf@gmail.com. 

 

Happy Reading!

Image Description: A collection of used books arranged on a white bookshelf with their spines facing outward. The images is positioned at an angle.

Credit: Jamie Taylor / Unsplash

Books About Epilepsy or with Seizure Representation

Children's Books

  • Did You Know that I Have Epilepsy? by Stacey Crouch
  • Taking Seizure Disorders to School by Kim Gosselin
  • The Great Katie Kate Explains Epilepsy by M. Maitland DeLand
  • Let's Learn with Teddy about Epilepsy by Dr. Yvonne Zelenka
  • Lucky Feels Fuzzy by Josie Martinez
  • Zeeba and the Seizure by Michaela Barnes
  • Epilepsy Book for Kids by Layla Reid
  • Sometimes I Get the Wiggles by Andee Cooper, Thomas Hilley
  • Milo's Day At School by Shawnee Walker
  • The Adventures of Buzz Bee by Jacqueline Ann Gibson
  • Brian Learns About Epilepsy by Epilepsy Scotland
  • The True Life Adventures of Spunky Monkey, the Magical Poodle by Lauren Mitchell Ruehring
  • My Seizure Dog by Evan Moss
  • I Know Someone with Epilepsy by Victoria Parker
  • I Have Epilepsy. It Doesn't Have Me by Jamie Bacigalupo, J.A. Joyce
  • Farah and Ted Visit the Hospital by Epilepsy Scotland
  • Becky the Brave by Laurie Lears
  • And Down Went Poss by Anne Little
  • Lee: The Rabbit with Epilepsy by Deborah M. Moss
  • Your Team by Jessica Elizabeth Dark
  • My Life with Epilepsy/Mi Vida con Epilepsia by Mari Schuh
  • Let Me Tell You about Epilepsy by John Crouch, Stacey Crouch
  • What is Epilepsy? A Simple Explanation of a Complex Diagnosis/¿Qué es la epilepsia?: Una explicación simple de un diagnóstico complejo by Hailey Adkisson
  • Milo & Me Learn about Abscence Epilepsy by Sophia Seeger
  • Lucky's First EEG by Josie Martinez
  • The Abilities in Me: Epilepsy by Gemma Keir
  • Char Bear Keeps Dancing by Kate Kostolansky, Dr. Christina Briscoe Abath, Dr. Christopher Yuskaitis
  • Andi and the Storm by Lexie Griffiths
  • The Little Ninja by Hayley Lewis
  • Little Friends of Epilepsy by Taheerah Davis-Zabate
  • Matthew Rides into "Space" by Erika Rutley
  • Rodi the Robot has a Seizure by John Crouch, Stacey Crouch
  • Abigail Has Epilepsy by Monique Jeanine Lycette
  • Emma by Jo North
  • Let's Learn About Epilepsy Spike and the Gang (Series) by Leslie Pedreira
  • Orchestra in Our Brain by Cynthia Fabian
  • My Friend with Epilepsy by Elizabeth Andrews
  • Karen's Epilepsy by Elizabeth Baltaro
  • Wiggles and Shakes by Brandi Harrington
  • Why Am I Different?" We Have Epilepsy by Kindra and Friends
  • Unstoppable Me by Miss Jordynn Farley
  • Meet Josie by Heather McCarthy, Kate Ryan
  • The Girl with the Big Blue Eyes by Savannah Jane McCrary, Debbie McCrary
  • My Mommy Has Epilepsy by Stacey Chillemi
  • See What I Can Do! by Jon Robberts
  • Theodore's Dragon by Beckie Martin-Scott

Middle Grade Books

  • Mommy, I Feel Funny!: A Child's Experience with Epilepsy by Danielle M. Rocheford (nonfiction)
  • We Could Be Heroes by Margaret Finnegan (fiction)
  • Ella and the Electic Paintbrush: A Positively Charged Epilepsy Tale by Ella Gray, Frazer Morton (fiction)
  • Is Epilepsy Contagious? by Julie Devinsky
  • Can I Tell You About Epilepsy?: A Guide for Friends, Family, and Professionals by Kate Lambert
  • Being Sara - Touchdown by Chris Passudetti (biography)
  • Mimi: A Story about Abscence Seizures by Mariah Mayhugh (fiction)
  • Cricket Gives Comfort: Exploring Epilepsy by Pat McCaw (fiction)
  • Seize the Day!: A Story about Epilepsy by Matt Francescangeli (fiction)
  • Living with Epilepsy (Living Well Chronic Conditions) by Shirley Wimbish Gray, Serge Bloch (nonfiction)
  • Across the Pond by Joy McCullough (fiction)
  • Meena Meets Her Match by Karla Manternach (fiction)
  • Mustaches for Maddie by Chad Morris and Shelly Brown (fiction)
  • Stick with Me by Jennifer Blecher (fiction)
  • Stargazing by Jen Wang (fiction)
  • What the Wind Can Tell You by Sarah Marie A. Jette (fiction)
  • The Sky at Our Feet by Nadia Hashimi (fiction)
  • Lulu Sinagtala and the Tagalog Gods (Series) by Gail D. Villanueva (fantasy)
  • Jayben and the Golden Torch by Thomas Leeds (fantasy)
  • Talking to Alaska by Anna Woltz, translated by Laura Watkinson (fiction)
  • The Tiger Who Sleeps Under My Chair by Hannah Foley (fiction)
  • I Am Not a Label by Cerrie Burnell (nonfiction)
  • Just Kids: Visiting a Class for Children with Special Needs by Ellen B. Senisi
  • Takedown by EMJ Benjamin (fiction)
  • Mighty Mike Bounces Back: A Boy's Life with Epilepsy by Robert Skead, Mike Simmel
  • The Last Book in the Universe by Rodman Philbrick (dystopian)
  • Nowhere Near You by Leah Thomas (fiction)
  • Because You'll Never Meet Me by Leah Thomas (fiction)
  • The Littlest Magnolia by Sara Triglia (fiction)
  • Epilectra (series) by Sue Seserman (graphic novels)
  • In My Head (series) by A.C. Sutliff (fiction)
  • Lefty Carmichael Has a  Fit by Don Trembath (fiction)

Young Adult Books

  • Looking at the Stars by Lewis Hine (memoir)
  • Epilepsy: The Ultimate Teen Guide by Kathlyn Gay, Sean McGarrahan
  • Just Like the Lotus by Chiara Sparks (memoir)
  • The Thing with Feathers by McCall Hoyle
  • The Night Sky in My Head by Sarah Hammond (fiction)
  • The Ghosts and Jamal by Bridget Blankley (fiction)
  • Just Like Me by Louise Gooding (anthology)
  • This Ordinary Life by Jennifer Walkup (fiction)
  • 100 Sideways Miles by Andrew Smith (fiction)
  • Breathing Underwater by Abbey Lee Nash (fiction)
  • The Bone Whisperer Chronicles by Rachel Rener (paranormal, mystery)
  • Unfolding by Jonathan Friesen (dystopian, romance)
  • Saving Sophie by Debbie Schrack (romance)
  • Throat by R.A. Nelson (paranormal)
  • The Islands at the End of the World (series) by Austin Aslan (dystopian, sci-fi)
  • Dreaming of Antigone by Robin Bridges (fiction)

Adult Readers

  • Epilepsy in Children by Orrin Devinsky, Erin Conway, Courtney Schnabel Glick (nonfiction)
  • Dings by Lance Fogan (fiction)
  • Through Plate Glass by Christine Carter (poetry)
  • A Toxic Education by Mark Doo (nonfiction)
  • A Smell of Burning by Colin Grant (memoir)
  • A Mind Unraveled by Kurt Eichenwald (memoir)
  • The Hidden Child by Louise Fein (historical fiction)
  • She Danced with Lightning by Marc Palmieri (memoir)
  • My Journey with Epilepsy Through Life by J. Michael McQueen (memoir)
  • Missing Michael by Mary Lou Connolly (memoir)
  • Ida McKinley: Epilepsy, Depression, & Endurance (The Chronic Illness Chronicles) by Destiny Yarbro
  • The Brainstorms Series by Steven C. Schachter (nonfiction)
  • Beyond My Control by Stuart McCallum (memoir)
  • Epilepsy You're Not Alone by Stacey Chillemi (nonfiction)
  • Facing Me by Stephanie S. Sowyer (memoir)
  • Good Morning Beautiful by Paulette George (nonfiction)
  • Uncontrollable by Sara Staggs (fiction)
  • Teagan's Story by Talia Jager

Sources

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